精东影业 Magazine - Body Politics / Solutions Journalism Tue, 22 Apr 2025 18:34:18 +0000 en-US hourly 1 https://wordpress.org/?v=6.7.2 https://i0.wp.com/www.yesmagazine.org/wp-content/uploads/2019/12/yes-favicon_128px.png?fit=32%2C32&quality=90&ssl=1 精东影业 Magazine / 32 32 185756006 How Including People With Disabilities Benefits聽Everyone /body-politics/2025/04/19/disabled-people-benefit-workplaces Sat, 19 Apr 2025 12:00:00 +0000 /?post_type=article&p=124228 Whether it鈥檚 declaring that blindness prevents government employees from  or suggesting that hiring workers with intellectual disabilities contributed to , the Trump administration has repeatedly questioned whether people with disabilities belong in the workplace.

This stance reflects widespread stigma and misconceptions about what people with disabilities can and do accomplish.

Negative stereotypes and exclusionary practices persist despite the fact that people with disabilities are the  in the United States, representing nearly . Whether or not you identify as disabled, most people  to others with a disability.

For years I have researched how people with disabilities have been kept out of efforts to guarantee equal access for everybody, particularly in higher education. This exclusion is often due to unfounded , and the false premise that disability inclusion requires lowering standards.

However, studies demonstrate that including people with disabilities is , not just disabled people. Schools and workplaces are more collaborative and responsive when people with disabilities are included at all levels of the organization. In other words, disability inclusion isn鈥檛 about charity; it鈥檚 about making organizations work better.

The Americans with Disabilities Act, enacted in 1990, provides legal protections for people with disabilities in the workplace.听

Rolling Back Protections

President Donald Trump issued executive orders the day he took office for a second time that aimed to end government and private-sector efforts to make U.S. workplaces and schools more . In addition to affecting LGBTQ communities and people of color, these measures could  toward protecting the rights of people with disabilities to earn a living.

Between 40 million and 80 million Americans . Even the higher end of this range underestimates the actual number of people with disabilities, because some individuals choose not to identify that way or even realize they qualify as such. That includes people with impairments from chemical and pesticide exposure, as well as many older people and those who are living with HIV and AIDS, to name some examples.

Only 15% of people with disabilities , so most individuals become disabled over their lifetime.

Tracing Historical Precedents

Blaming failures on people with disabilities and people of color echoes the , an attempt to scientifically prove genetic inferiority of disabled, LGBTQ, Indigenous, and Black people.

Eugenics led to the institutionalization and forced sterilization of, and the coercive experimentation on, people with disabilities, immigrants, and  Even the  the concept in the early 20th century.

These studies began to fade after World War II, but their legacy persists. Even today, forced  in U.S jurisdictions in 31 states and in Washington.

Due to widespread activism and the advent of new legal protections, many states finally  in the late 1970s. But eugenics-era experiments provided foundations for contemporary medical research, standardized testing, and segregated school placements.

People with disabilities have far-reaching legal guarantees of civil rights and access today due to the . The statute, which was enacted in 1990 and strengthened in 2008, provided protections in the workplace, educational settings, transportation, and places of recreation and commerce, among others. It also guarded against negative perceptions of disability.

For example, if an employer perceived someone as disabled and denied them consideration in the hiring process because of that, the candidate would be protected from discrimination under the ADA鈥攚hether or not they had a disability.

While these advances are significant, many people with disabilities still do not have access to their basic civil rights. This is particularly true of Black people with disabilities, as they are disproportionately , , , and marginalized in .

Accommodations for people with disabilities enable them to contribute unique talents to classrooms and workplaces.听

Gaining Workplace Accommodations

Critics of inclusion efforts sometimes wrongly argue that employing people with disabilities is too costly due to the accommodations they may require. But the  in the Department of Labor鈥檚 Office of Disability Employment Policy found in 2023 that nearly 60% of these accommodations cost nothing.

What鈥檚 more, many  are available to cover these costs. Disability civil rights law does not mandate hiring people who are not qualified or lowering standards to include the disabled. The law requires that candidates meet the 鈥溾 of the job in order to be hired.

According to a , the employment rate for working-age people with disabilities was 38% compared with 75% for nondisabled people. Though there are countless reasons for this disparity, many people with disabilities can and want to work, but employers don鈥檛 give them the opportunity.

Providing Benefits for Everyone

Many accommodations designed for people with disabilities also benefit others.

Captioning on videos and movies was originally meant to benefit the deaf community, but it also helps multilingual speakers and people who simply . Similarly, visual or written instructions assist people with depression, Down syndrome, or attention-deficit/hyperactivity disorder, but they can also make tasks more accessible for everyone, along with breaking assignments into smaller components.

 benefit people with autism and post-traumatic stress disorder, while also providing a reprieve in a noisy work environment and minimizing distractions. Remote work options can make it easier for people with chronic illnesses to be employed, and they similarly benefit others who may have caregiving responsibilities鈥攈elping attract and retain talented employees. Text-to-speech software provides people with cerebral palsy and nonspeaking individuals with options for communication, similar to options that many people already use on their phones.

A  demonstrates the broad benefits of making jobs and schools more accessible to people with disabilities, which is ultimately an advantage for everyone.

Studies on diversity in educational and workplace settings also demonstrate positive outcomes. In a study of 10 public universities, researchers found that students who reported  had higher scores on measures of more complex thinking, a concern for the public good and an interest in poverty issues, and were more likely to vote and develop strong leadership skills.

In a national survey of human resources managers conducted in 2019, 92% of the respondents who were aware that one or more of their employees had a disability said  than their peers who did not.

Research published by Harvard Business Review  to hiring people with disabilities.

For one thing, people with disabilities can have unique insights that contribute to the workplace culture. The presence of employees with disabilities can make the environment of entire companies and organizations more collaborative. Earning a reputation for inclusiveness and social responsibility can improve customer relations and can give businesses an edge when they seek funding and recruit talented new employees.

Ultimately, I believe it鈥檚 important to create conditions where anyone can thrive, including people with disabilities. Doing so benefits everyone.

This article is republished from  under a Creative Commons license. .

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Rebuilding the World through Queer Video Games /body-politics/2025/04/15/radical-worldbuilding-queer-video-games-excerpt Tue, 15 Apr 2025 12:00:00 +0000 /?post_type=article&p=124873 We stand now in a historical moment when we desperately need the ability to build new worlds. This is a moment of immense concern for the future of the world as we know it today鈥攖hreatened by climate crisis, the ongoing effects of a pandemic, and a turn toward right-wing extremism across the globe鈥攂ut it is also a moment of immense worldbuilding potential. For marginalized people, the pressure of this moment feels all the more palpable.

In the United States, with legal protections for LGBTQ people in jeopardy and violent incidents of racism, xenophobia, transphobia, and homophobia on the rise, it has become clear that the world we currently inhabit is broken and deeply unjust.

We now see the world before us more clearly. And this new clarity brings with it an urgent longing to deconstruct and reconstruct the world, to try again, to experiment with radically alternate ways of being, to build the world otherwise.

Before we can build the world in alternate ways, however, we need to be able to envision alternate worlds. Works of science fiction and other forms of speculative art have long been at the forefront of efforts to build new worlds through imagination. Worldbuilding of this sort is never a neutral endeavor; designing the world anew always entails resisting or reinforcing (sometimes simultaneously) existing structures of power.

The cultural stakes inherent in worldbuilding have been made particularly clear through creative and scholarly work around Afrofuturism and Black speculative worldbuilding. As performance studies scholar Jayna Brown argues in her writing about Black mystics and musicians, structures of white supremacy have placed Black communities into a 鈥渂leak and bloody dimension we are taught to call reality.鈥 In response, Brown calls for 鈥渂uild[ing] alternative worlds, in this dimension and in others,鈥 as a way to 鈥減ractice alternative ways of being alive.鈥

In addition to turning to fiction, art, and music to find the speculative worlds that inspire us, there is another media form we should be taking closely into consideration when we look for these 鈥渁lternative ways of being live鈥: video games. Video games have often been derided or dismissed precisely because they seem disconnected from the 鈥渞eal world.鈥 Yet, in truth, the relationship between video games and the world around us is much more complex than these critiques would suggest.

As many game studies scholars have argued, video games are intimately bound up with the real world; they shape and are shaped by the conditions of their production and reception. At the same time, video games offer opportunities to inhabit worlds that differ from our own. Indeed, we can understand video games themselves as alternate worlds.

In their own ways, they are each models for other ways that the world might operate. They offer us opportunities to 鈥渜uestion the order of things,鈥 as the disability studies scholar Robert McRuer writes in , to ask how this order has been 鈥渃onstructed and naturalized . . . and how it might be changed.鈥

Certainly, not all video game worlds offer visions of empowerment for those who are pushed to the margins. Video games are a vast and varied medium, and games culture is still marred by , sexuality, and gender. At the same time, games themselves offer powerful opportunities to experiment with strategies for rebuilding the world we currently live in, one where many forms of oppression currently reign.

Yet, through games, we can see that building (or unbuilding and rebuilding) the world necessitates a revolutionary redesign of the foundational logics and underlying operations of the world we inhabit.

Through video games, I theorize a practice that I term queer worldbuilding. Queer worldbuilding is not the same thing as building worlds that feature queer stories or communities, though such worlds themselves have immense value. Instead, queer worldbuilding describes the practice of constructing new worlds through methods, frameworks, and tools that can themselves be understood as queer.听

In this spirit, I analyze video games to offer as examples of building worlds through a process that itself challenges or rewrites norms around sexuality, gender, identity, and desire. In them, we find tools for both building queer worlds and queering the world around us.

Every Video Game Is a World

This alternate vision of worldbuilding is premised on understanding video games themselves as worlds. When we think of video games and worldbuilding together, it is common to think of large-scale, expansive, story-focused games with extensively developed narratives. These games, certainly, are worlds. But so are all video games, regardless of their content. Small games are worlds. Abstract games are worlds. Puzzle games, mobile games, experimental games, absurdist games, games with no characters: All of these video games are worlds, in their own right.

Video games do sometimes contain games, but what they are, above all, is worlds: universes in miniature. Reframing video games as worlds opens up new opportunities for making sense of the cultural meaning that games contain. 

If games are worlds, then the importance of competition, achievements, and technological prowess fades into the background. In its place, what comes to hold meaning in a video game is its qualities as a space for existing. In this game world, who has power? Who is afforded freedom, and who is placed under constraint? How do beings connect with one another?

The spirit of video game worldbuilding has much in common with the spirit of queerness. Both describe a mode of imagining alternate ways of being in the world. As I and my fellow queer game studies scholars have argued elsewhere, video games are rich sites for locating and expressing queerness. While some video games (whether mainstream or independent) contain the presentation of LGBTQ identities, a great many more contain queer meaning鈥攐ffering themselves as opportunities for exploring queer play, engaging with queer design, or undertaking queer analysis.

Insisting on the queerness of video games, in its many forms, is a way to reclaim a medium that has long been exclusionary to queer people. To say that video games can model queer worlds is to expand on this reclamation, to move beyond making a place for queer people in the world of video games by insisting that video games can aid us in making the world itself more queer.

There are many ways in which queer worlds manifest themselves in video games. Multiple AAA games of the sort that engage in elaborate narrative worldbuilding now prominently feature queer characters. One high-profile example is The Last of Us Part II (Naughty Dog, 2020), which includes a lesbian protagonist and a transgender side character and was the recipient of a 2021 GLAAD Award for Outstanding Video Game. 

Beyond the sphere of mainstream video games, the rise of queer avant-garde game makers has brought with it an explosion of indie video games whose worlds are directly structured around queer experience. Mattie Brice has noted that white designers were centered in the early days of the queer games avant-garde, which began to take form at the start of the 2010s. Today, a growing number of these games are being made by, about, and for queer people of color. 

These range from The Black Trans Archive (Danielle Brathwaite-Shirley, 2021), which wrestles with the erasure of Black trans people from documented histories, to the upbeat roller derby 鈥渞hythm ga(y)me鈥 Skate & Date (Geneva Hayward, 2020). In Skate & Date, players skate to a musical beat in the role of Maggie, a Black femme roller derby team captain with a crush on a woman from a rival team. A game like Skate & Date creates its own vision of a queer world: a world where femmes are, as a matter of course, powerful physical competitors who romance other femmes.

Queer Video Game Worlds

Queer video game worlds also manifest themselves as queer communities. Many queer and transgender people have shared stories about using online role-playing games to explore their identities and connect with others who share similar experiences: a way of forming queer games worlds while using game worlds to understand oneself as queer. Beginning in 2012 and 2013, events like GaymerX and the Queerness and Games Conference built temporary worlds where queer people who made, studied, or simply loved video games could come together to play.

At the same time, many video game worlds that do not appear queer can be understood queerly. These worlds are places where the norms that we often mistake for universal truths鈥攐ur unquestioned beliefs about how the world works, both socially and physically鈥攁re sidestepped, rewritten, or overturned. Indeed, the relationship between video games and queer worldbuilding goes deeper than the queerness of any individual game world.

Video games serve as opportunities to transform queer world-making into something concrete. They offer us playgrounds where we can reach out and touch, as trans studies scholar Susan Stryker writes in describing the process of transing, 鈥渢he material truth of a potential for worlding otherwise.鈥 They show us world-making in action.

Certainly, the queer worlds we find in video games offer us a critical entry point into imagining how we might queer the world around us. Like all queer works of art and ways of living, they are messy. Queer video game worlds are often silly, improbable, or impossible, ecstatic and joyful but also broken or mournful, posthuman and nonhuman, postapocalyptic, counterhegemonic in some ways and complicit with dominant structures of power in others.

Queer video game worlds balance the longing to fix worlds and the hunger to destroy them. These worlds are many things at once. They are an invitation to remake the world through play. They are whole universes, shrunk down to the scale of tiny dioramas, galaxies under glass. Video game worlds challenge us to question how the universe鈥攐ur universe, any universe鈥攆unctions.

Games will not fix a broken world. They will not save a world on the brink of collapse. But they will inspire us to explore new ways of rebuilding our world. And, when necessary, they will remind us that some worlds cannot be saved.

This excerpt, adapted from by Bo Ruberg (New York University, 2025), appears by permission of the publisher.

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The Fight to Preserve Medicaid for Disabled Children in California /body-politics/2025/04/11/medicaid-california-disabled-children Fri, 11 Apr 2025 12:00:00 +0000 /?post_type=article&p=124969 Jessica Peque帽o of Napa has been taking breaks from watching the news lately. But when she opens her social media feeds for the support groups she frequents for parents of children with disabilities, they鈥檙e full of panicked chatter about the news she鈥檚 been trying to avoid. 

Medicaid鈥攖he state and federally funded program that provides health coverage for almost and about half of the state鈥檚 children鈥攃ould face billions of dollars in federal cuts under a budget proposal from House Republicans. That鈥檚 alarmed families like the Peque帽os, who rely on Medicaid, called Medi-Cal in California, to pay for medical care and other support for their children with chronic conditions.

Peque帽o鈥檚 11-year-old son, Xavier, has a rare, genetic immune disorder that undermines his body鈥檚 ability to fight disease. Thanks to Medi-Cal, Xavier receives medications that keep him alive and would otherwise cost his family around $100,000 a month. The program also pays for Xavier鈥檚 medical equipment such as a wheelchair and portable oxygen tank, antibody and respiratory treatments, and hospital stays when he gets sick.

鈥淚t鈥檚 allowed him to go to school. It鈥檚 allowed him to be home and not living in a hospital 24 hours a day,鈥 says Peque帽o, who cares for Xavier while her husband works as a forklift driver. 鈥淭here鈥檚 no way right now we can afford his monthly medications, his treatments or his hospitalizations. Without Medi-Cal it would essentially be a death sentence for him.鈥 

Parents of children with special health care needs aren鈥檛 the only ones alarmed about the potential cuts鈥攄isability advocates, health care providers, budget analysts, and state lawmakers have also expressed concern. Although the House proposal, passed Feb. 25, doesn鈥檛 specifically call for Medicaid cuts, it does direct the House Energy and Commerce Committee, which oversees Medicaid, to come up with $880 billion in savings over the next 10 years. Achieving that amount of savings would be difficult without making cuts to Medicaid, experts said. 

The requested budget cuts still need to be adopted by the Senate, written into legislation, and passed by Congress. But Aaron Carruthers, executive director of the California State Council on Developmental Disabilities, said he doesn鈥檛 see how cuts to Medicaid can be avoided under the Republican plan. The council is an independent state body that advises the governor and legislature on policies related to adults and children with developmental challenges.

鈥淭his is a four-alarm fire, this is all-hands-on-deck, there is no messing around,鈥 Carruthers says. 鈥淭he cuts are so big that it鈥檚 going to [impact] everyone in the program, there鈥檚 no way around it.鈥

President Donald Trump and House Speaker Mike Johnson have said Republicans鈥攚ho have sought to cut Medicaid in the past鈥攚on鈥檛 touch it this time, but will look to reduce fraud, waste, and abuse. But information from the Congressional Budget Office shows that there is no way to reduce the budget by the proposed $880 billion without making cuts to Medicaid (the only other option is cutting Medicare鈥攖he health insurance program for people over 65鈥攁nd Republicans have ruled that out too). 

Republicans have also floated proposals aimed at reducing spending on the program such as through work requirements (although most people with Medicaid already work), capping the amount of Medicaid funding sent to states, and making it harder for people to enroll and renew coverage. 

鈥淲别 don鈥檛 really have specific proposals to react to yet. It鈥檚 kind of a list of ideas, and most of them are bad ideas,鈥 says Mike Odeh, senior director of health policy at Children Now, a children鈥檚 research and advocacy organization. 鈥淔or kids with special health care needs, thinking about their access to specialty care, to medical equipment, to prescription drugs鈥攁ll of that could be jeopardized, as well as the care and coverage of their family members.鈥

Medi-Cal is especially important for children with disabilities because they often need more specialized and expensive care than children without special health care needs. The program recognizes this and allows some of these children to qualify for Medi-Cal even if their families earn too much to make them eligible under standard rules, or if a parent already has insurance through an employer. 

Private insurance typically doesn鈥檛 cover the full cost of care for people with severe disabilities, and copays and coinsurance add up when someone needs a lot of medical care. In these instances, Medi-Cal covers the costs that private insurance doesn鈥檛. 

Xavier Peque帽o, 11, outside UCSF Benioff Children鈥檚 Hospital in San Francisco. Peque帽o has a rare, genetic immune disorder and relies on Medi-Cal to pay for his care. Photo courtesy of the Peque帽o family.

Anita Morris, who is based in Fresno, California, relies on Medi-Cal to cover costs for her daughter, Jayline, that her employer insurance won鈥檛 cover. These include daily nursing care, diapers, and a wheelchair. Previously, Jayline also received physical and occupational therapy. Jayline, 26, has severe epilepsy and autism due to a genetic disorder. She can鈥檛 talk, walk, or eat by herself. Without the nursing that Medi-Cal provides, Morris said she鈥檇 have to quit her job as a clinical social worker to take care of her. 

鈥淚鈥檓 not freaking out yet, but it does cause me concern,鈥 Morris says. 鈥淚f they need to look at abuse and fraud, do that, but don鈥檛 take away the services in that process because the services aren鈥檛 causing the abuse and fraud.鈥

Cuts would also impact children with special health care needs who aren鈥檛 enrolled in Medi-Cal, said Ann-Louise Kuhns, executive director of the Children鈥檚 Hospital Association. That鈥檚 because, for most hospitals and providers of specialty care to children, about two-thirds of their income comes from Medi-Cal patients, she explained.听

鈥淚f you start reducing support for that network, you jeopardize access to care for all of the children that rely on those services, not just the ones on Medi-Cal,鈥 she says. 鈥淭he whole system is knitted together.鈥

Beyond Medi-Cal health insurance, Medicaid dollars support other important programs and services for children and youth with disabilities, including Regional Centers, early intervention programs for children with developmental delays, California Children鈥檚 Services, in-home nursing, and special education services such as speech therapy and school health aides.

Fernando Gomez, who lives in West Los Angeles, has two sons who receive Medicaid-funded services through their local regional center. Oscar Antonio, who is 18 and has Down syndrome, has a physical therapist who works with him to navigate daily life and build independence. He鈥檚 also received speech therapy to help him learn to talk. As a result, a dream that once seemed impossible鈥攁ttending college鈥攈as become feasible, Gomez said.听

Meanwhile, Gomez鈥檚 other son, Diego, 15, who has autism, is receiving educational support. Gomez, who鈥檚 retired, said it would be impossible for him and his wife to afford those services themselves. He also worries that Medicaid cuts could destabilize the lives of other Latinx families and their children and undermine progress he believes California has made toward reducing disparities in access to regional center services.

鈥淚 call it a death blow because it will be, it literally will be,鈥 he says. 鈥淚t will kill many of our family members鈥 ability to have a productive and engaged 鈥 life.鈥

Thanks to treatments paid for by Medi-Cal, Xavier Peque帽o, 11, of Napa is able to go to school and live at home with his family. Photo courtesy of the Peque帽o family.

While California contributes state funds to Medi-Cal, more than half of the funding鈥$98 billion out of $161 billion in Medi-Cal spending鈥攃omes from the federal government. That makes it difficult for the state to backfill any large federal cuts to the program, health policy advocates and budget experts said.

For now, many organizations and advocacy groups are focused on trying to avoid cuts to the program. Some groups are offering guidance and trainings for parents of children with special health care needs on how to share their concerns and Medi-Cal stories with their congressional representatives. Others said they are connecting directly with those representatives to urge against cuts.

Nevertheless, some said California could do more to prepare for potential changes to Medicaid. The California Budget and Policy Center has suggested the state raise corporate tax rates, eliminate certain tax loopholes, and reduce tax breaks for the wealthy.

鈥淪tate leaders really could proactively develop contingency plans and explore solutions to safeguard health care coverage,鈥 says Adriana Ramos-Yamamoto, a senior policy analyst with the center. 鈥淲别 know that there are actions that state leaders can take to raise additional revenue equitably, making sure that profitable corporations pay their fair share in order to support critical health care programs like Medi-Cal.鈥

Aides for the chairs of California鈥檚 Assembly and Senate health committees, Assemblymember Mia Bonta and Senator Caroline Menjivar, respectively, said they were both unavailable for interviews. However, Assemblymember Bonta鈥檚 office sent a written response that said she is 鈥渃ommitted to ensuring our communities can continue to access the care they need.鈥

Peque帽o said she鈥檇 like to see more evidence that the California legislature is trying to keep the cuts from happening, and wants to know what the state will do to protect children like Xavier if cuts do go ahead. 

鈥淲hat is the backup plan?鈥 she says. 鈥淲hat are they doing, and what can they legally do to help protect families like ours that are going through these things and are wondering, 鈥榃hat鈥檚 next?鈥欌澛

In the meantime, she and her family are trying to come up with their own backup plan. Peque帽o said she鈥檚 even considering taking Xavier to another country, such as Canada, so he can get care.

鈥淭he thought of losing benefits that keep him alive and the possibility of having to watch things get cut and watch his quality of life deteriorate 鈥 watch him essentially die because of a choice the government made, it鈥檚 terrifying,鈥 she says. 鈥淣o one鈥檚 life should be cut short because of the government鈥檚 choices.鈥

This story was produced in collaboration with the.

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鈥楶atrice鈥 Captures the Fight for Marriage Equality for Disabled Couples /body-politics/2025/04/10/patrice-documentary-disability-marriage-equality Thu, 10 Apr 2025 12:00:00 +0000 /?post_type=article&p=124834 Since 2015, when the Supreme Court decided in that LGBTQ people could legally wed, the United States has been touting its commitment to marriage equality. When conservative legislators hinted at in 2022, the U.S. House and Senate even approved the , which then President Joe Biden signed into law. Though the bill fell short of codifying Obergefell v. Hodges, it forces states without marriage equality laws to recognize and respect LGBTQ marriage licenses signed in other states.

However, when considering the concept of marriage equality, there has been one population overlooked and excluded: disabled people. , a 鈥渄ocumentary rom-com鈥 streaming on Hulu, takes up this problem, bringing a siloed issue to the forefront in a nation that believes the fight for marriage equality has already been won. But, as the documentary aims to explain, there鈥檚 no true marriage equality if disabled people are grossly penalized for falling in love.

Patrice follows a mixed-race disabled couple, Patrice and Garry, who desire to get married. But there鈥檚 one pesky problem: the marriage penalty. When disabled people who receive Social Security benefits such as Supplemental Security Income (SSI) get married, they are and their healthcare coverage, the latter of which is typically provided through Medicaid.

That鈥檚 the predicament Patrice and Garry find themselves in. Though they love one another, they are unable to live together or legalize their union or they will no longer have access to the critical lifelines of support that allow them to live independently. Unfortunately, the Social Security Administration (SSA) doesn鈥檛 know how many disabled people lose their SSI benefits when they marry鈥攖hey don鈥檛 keep track, an SSA spokesperson told in 2024.听

Patrice鈥檚 desire to live on her own stems mostly from her upbringing: She came of age in the 1970s and 鈥80s when our understanding and societal inclusion of disabled people were vastly different. Patrice endured stigma for being intellectually disabled in school before she was placed in an accessible education setting that better suited her learning and social needs. As a young adult, she was institutionalized and was harmed by those responsible for her care in the facility. She then faced discrimination once out of the institution while trying to find employment to live on her own as a disabled adult.听聽

Despite the hurdles she鈥檚 faced, Patrice innately knew she had a right to create the life she envisioned for herself鈥攁nd that she did. Though Patrice is unable to wed without significant risk, the film still spotlights how she has been able to build a supportive community. From her relationship with Garry and her friendships to her eclectic hobbies and her job as a crossing guard, the film fully humanizes Patrice without leaning into the stereotypes and tropes that often plague disabled people. That community steps in when Patrice needs to replace an essential lifeline鈥攁 modified van large enough to accommodate a wheelchair.

The average person may be unaware at how costly these modified vehicles are. Used vans, for instance, can cost as much as a modest luxury-brand car. Patrice鈥檚 struggle is familiar; as someone who was once on benefits, acquiring a car was out of my financial grasp. I didn鈥檛 want to take out a loan because of my limited financial means, and I knew that crowdfunding could jeopardize my benefits.

We see this conundrum when Patrice shares how fundraising efforts for her first van impacted her benefits. In order to acquire this new van, she has to use other means that allow her to purchase a replacement van without directly accessing the funds. Once again, Patrice, like many other disabled people, has to jump through unbelievable hoops to get the basic tools she needs to thrive in society. 

Currently, SSI limits in savings and assets. Since 1989, the limit has been $2,000 for an individual and $3,000 for a couple, with an exception made for a single car and a single home. Not only should that number have increased to $10,000 for an individual and $17,000 for a couple to accommodate inflation, but it should also consider how expensive it is to provide in-home care for disabled people. 

鈥淭here鈥檚 anger, there鈥檚 a feeling of betrayal sometimes,鈥 attorney Ayesha Elaine Lewis . Lewis is leading a national campaign to secure marriage equality for disabled people by ending this marital assets clause. 鈥淏ecause the [Americans with Disabilities Act] has a beautiful promise of full integration into society, of people with disabilities being able to live their destinies and make their life what they want of it. But with these rules still in place, it鈥檚 obvious that the full promise of the ADA hasn’t been implemented.鈥

At the end of the film, Patrice and her community raise enough money for the new wheelchair van. It was a beautiful ending that filled me with joy, especially now that I am on a journey to acquire my first set of wheels as a disabled adult who uses a wheelchair. Since I am several years removed from receiving benefits and I now have secure employment, I now have the financial ability to purchase a car and learn more about installing a wheelchair rack on the roof of the car I choose.

Financial freedom and the ability to take care of one鈥檚 needs or even purchase simple wants or luxuries of life shouldn鈥檛 feel out of grasp because one is receiving governmental assistance. We all deserve to be able to take care of ourselves and have the resources to do so without outdated strings attached.

It was refreshing to watch Patrice possess and display joy and wins while navigating antiquated systems that harshly impact the quality of life for disabled people. Often, storytelling surrounding disabled people can be heavily negative, and the light moments are downplayed or rarely seen; the documentary did a fair job in displaying the highs and lows with balance and nuance.  

Of course, since Patrice is a documentary rom-com, the ending is pleasant: Patrice and Garry are able to have a commitment ceremony during a protest to raise awareness about the fight for marriage equality for disabled people. Though they are unable to legally marry, Patrice and Garry still secure a 鈥渉appily ever after鈥 for themselves on their terms. From the beginning of the documentary until the end, Patrice is fighting for a better world for not just herself, but for all those impacted by the rules and regulations that intrude on aspects of our lives that should be our choice.

Patrice鈥檚 activism鈥攆rom talking to legislators to demonstrating during the day of action for marriage equality鈥攁re a testament to her understanding that these issues are not isolated; marriage equality matters to the health and sustainability of the fabric of our society. Patrice: The Movie was captivating, led with so much care and intention, and showed us that the work to ensure that every American can live and marry whoever they want is a fundamental right, even for people with disabilities. 

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Murmurations: A Dream for Trans Belonging /opinion/2025/03/20/murmurations-trans-freedom Thu, 20 Mar 2025 18:20:29 +0000 /?post_type=article&p=124463 Here we are in 2025 navigating rising oligarchy. 
This last month, I kept trying to understand why thoughts were coming to my mind, like, 
鈥淲hy am I even here? Should I be here?鈥 
It felt jarring and vulnerable at 40. 
So I kept it to my real ones. 

To myself, I rationalized,
鈥淚 know this toxic narrative is wrong about us.鈥
鈥淢y partner and I have a loving, supportive relationship.鈥
鈥淭he kids are alright.鈥
鈥淥ther people have it way worse.鈥
鈥淲别鈥檝e been through this before.鈥 
鈥淲别 know how to survive.鈥

It鈥檚 true. We do know how to survive鈥
When your rights are stripped away on repeat 
When the walls keep closing in tighter 
When they destroyed
because they can
When it feels more possible to disappear than earn a doctorate degree, survival becomes the primary goal.

We know how to survive. A lot of us have been surviving our entire lives.
And I鈥檓 not just talking about raw survival against street and institutional violence. 
It鈥檚 the way the hypervigilance we carry in our bodies impacts our nervous system. 

It鈥檚 the increased prevalence of autoimmune diseases, cardiovascular issues, depression, and PTSD among trans people, particularly those who have also experienced racialized trauma.
It鈥檚 also the economic barriers to health care and discrimination within the medical-industrial complex. 
Being trans is beautiful, but the world makes it exhausting.

Path to Liberation

Trans people have saved my life time and time again. I came out in 1998. I was 14 and living in a town along the so-called U.S.鈥揗exico border. All we had was each other. In a time with few legal protections and next to no resources, we had to organize deep systems of care for ourselves. Over the past two decades, there have been many political and cultural changes, thanks to the labor of advocates (trans and otherwise) who have pushed tirelessly to implement pathways to better protect folks.

However, it is risky to become dependent upon incremental policy change. As important as these kinds of wins are, what is granted by colonial law can also be revoked by colonial law. When we become comfortable within the bounds of what is 鈥済iven鈥 to us (often crumbs), we settle for less than what we know we really need: real solutions to the root causes of the political and ecological crisis we are facing. 

False 鈥渟olutions鈥 and concepts like individual upward mobility or assimilation (when even possible) often distract us with temporary comfort and take us away from building up the collective care and self-governance muscle that will actually protect us. We need that are rooted in values like radical care, collective governance, and mutuality.听

When we are not organized, the impacts of backlashes, such as the one we are experiencing now, are far more detrimental because when they come for us, what and who do we fall back on?  

Our autonomy is our power. Our long-built systems of survival and community defense are our power. There is so much to draw from in our collective DNA to guide us through this time. We know how to do this.

Trans people: Brown, Black, Indigenous, working class. 
So many beautiful stories. 
So much cultural wealth and lived wisdom rooted in the will to survive like hell against all odds.

From street economies to the people鈥檚 pharmacies
From houses for disowned youth to adopted queer parents
From Stonewall to
From our own designs of family to fierce love and solidarity
From prisons walls to asylum halls

Trans people have navigated a million plot twists鈥攎any steeped in violence鈥攂ased upon a perception of us:聽
How we exist in the eyes of others.
Be it the state, religion, our families of origin, or neighborhoods.听
And still they have no idea who we really are.听
Nonetheless, we remain.听
Our most prominent hxstorical rebellions powerfully led by Black and Brown trans women.

It Means Home鈥

I kept trying to understand why I was questioning my existence last month.
It might have had something to do with the right鈥檚 violent campaign to erase us while simultaneously hyper-visibilizing us, spending $215 million on anti-trans ads, to create another common enemy and boost votes.

鈥淭ake America back from pronouns and immigrants!鈥
Come on, we know they鈥檙e full of鈥.

But it worked. Across our backs.
Not even 0.5% of the population posed a supposed threat so big it gave the right (and moveable center) a perfect point of unity: 
鈥淧rotect our kids.鈥

Protect them from what exactly?
Learning and embracing that all different kinds of people exist?聽
A culture that teaches to not harm people for being different from yourself?
It is no surprise that those who see our Mother Earth and her life sources as nothing more than a dollar sign would despise a worldview in which we respect and revere life in all of its complex and beautiful intelligence.听

We will never understand all there is to this planet, but you don鈥檛 have to understand it to respect it. 

If we are speaking ecologically: Diversity is our best defense in the face of crisis. 
If we are speaking like my old timers: 鈥淓verything in its place.鈥  
Eradicating one thread in an ecosystem disrupts the entire ecosystem. 
Global traditional knowledge has carried that teaching since time immemorial. Everything is connected.

Humans are but one expression of nature. And yes, we are human.
Never mind the dehumanizing, ableist narrative that we are 鈥渋mposing mental illness鈥 by advocating for a right to a dignified life and basic respect.

Despite the long-overused weaponization of 鈥渘ature鈥 against queer and trans people (鈥淚ts not natural!鈥), sex and gender variance is reflected all across the natural world.听

From birthing male seahorses聽
to split-gill mushrooms鈥 28,000 different sexes聽
to the female swallowtail butterfly鈥檚 鈥渄oublesex鈥 genes that provide wing pattern camouflage from predators鈥
Biodiversity is a part of nature.
Adaptation is a part of nature.
Trans, gender-expansive, and two-spirit people are a part of nature.
Honor it.听聽

My comrade asked me: 鈥淲hat are your wildest dreams for trans relatives?鈥澛
My dream is not just for us to survive, but that we come to know belonging.听
That we remember the truth of who we really are in a mess of endless projections and attacks.听
I pray that as we endure a war on our right to exist鈥攚e hold the deep knowing that we are not alone.听
The Earth and so many others, human and non-human, are also enduring profoundly violent disruptions.听
We struggle in solidarity with all those who persist on the side of justice, the side of life.听
Now more than ever, our interconnection mandates us to protect the living world. Yes, we have a right to be here, but more than that, we need to be here.

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Reckoning: No Bodily Autonomy Without Gender Liberation /opinion/2025/03/27/reckoning-raquel-willis-gender-liberation Fri, 28 Mar 2025 00:32:43 +0000 /?post_type=article&p=124641 On Sept. 14, 2024, two months before the U.S. presidential election, I helped organize nearly 2,000 people in the streets of Washington, D.C. This was the birth of the , a collective demanding a cultural shift in how our society thinks about gender, our bodies, the choices we make regarding them, and the care that we deserve.

Building on the decades-long fights for reproductive justice and LGBTQIA+ rights, we marched in the autumn sun and chanted about collective power outside the Capitol and Supreme Court buildings. Our route ended with a rally elevating intersectional themes and a defiant dance party outside the headquarters of the Heritage Foundation, a key architect of .

At the time, we were among a minority of Americans who took that agenda鈥檚 promise of societal regression seriously. We hoped our effort would serve as an antidote during an uncertain election cycle. By then, the course charted by leaders across the political spectrum had proven dismal.

Democratic candidate that myopically focused on cisgender women and girls accessing abortion care with sparing mentions of access to in vitro fertilization. In contrast, Republican candidate Donald Trump danced around whether he would enact a . At the same time, his vice presidential pick opined about 鈥,鈥 insinuating that women who couldn鈥檛 or didn鈥檛 bear children were of lesser societal value than their counterparts.

Due to countless threads missing from the larger political discourse around care, things worsened for people on the margins by the time we made it to the ballot box. The chief conservative demonized Haitian immigrants, planned to 鈥,鈥 and orchestrated a rally that drew similarities to the historic Nazi regime. He also dealt a heavy blow to our burgeoning movement, spending on ads denouncing the idea that transgender people, especially migrants and those who are incarcerated, deserve holistic health care.

Now, less than four months after Trump鈥檚 inauguration, there are more profound threats toward the universal right to bodily autonomy鈥攁nd it is essential to understand the connective tissue and how they impact everyone, trans and cis alike.

On Inauguration Day, Trump signed an claiming to collapse sex and gender into a single identity category defined by a binary. He asserts that people assigned male at birth must identify as a man, and people assigned female at birth must identify as a woman. But the deeper aim, as has been the goal of the Republican party for nearly a decade, was to eliminate the acknowledgement and discussion of trans people in all corners of society. 

While the presidential action wasn鈥檛 legally binding, it set a precedent for continued attacks against the community. Within days, trans and nonbinary people reported that requests to change were being denied. The administration also struck down the option for an 鈥淴鈥 marker for more nuanced gender identities. This order, however, goes far beyond attacking trans and nonbinary people. It also erases the experiences of intersex people, whose sex often isn鈥檛 adequately defined by binary ideas of male and female. 

Then came an executive order calling for an end to gender-affirming care for anyone under the age of 19. The Trump administration elevated the conservative lie that affirming trans and nonbinary youth is detrimental, ignoring that shows the opposite. Further, anti-trans advocates never discuss cis youth who may have to access similar care to have a more normative bodily experience. They also ignore that intersex youth regularly face to make their bodies conform to a sex binary. We must also understand the widespread practice of nonconsensual youth circumcision as incompatible with bodily autonomy, regardless of the cultural or religious implications.

Many, like the majority of , regard these attacks on trans and intersex people as inconsequential because each group is estimated to make up just of the total U.S. and global populations, respectively. But Trump鈥檚 directives also reveal a malicious desire to define personhood as beginning at conception and to reduce people to their reproductive capabilities.

This has far-ranging influence on the fight for abortion access and resurfaces an outdated notion of child-bearing as a defining factor, which has historically limited opportunities for those assigned female at birth, particularly in education and employment.

Conservatives are obsessed with telling people who they are and what they can and can鈥檛 do with their bodies. Their current platform blends Christian religious dogma, the goals of the science-fiction-inflected , and the so-called . All of these, in their own ways, urge conformity and uniformity at all costs. In essence, you and your body are for serving a particular version of god and an authoritarian executive while upholding a white supremacist, capitalist patriarchy. Otherwise, those on the margins (including LGBTQIA+ people, women, migrants, people of color, and those who are poor) will fully wrest control and destroy society.

Over the last two months, it seems like those forces are winning, but there are historical sources of inspiration that believers in bodily autonomy can look toward. The concept of reproductive justice provides a sturdy foundation to expand how we think about access and the care that we deserve.

The framework was coined in a placed by the Women of African Descent for Reproductive Justice collective to demand that Congress center Black women鈥檚 barriers to the U.S. health care system and to comprehensively reform it. They specified their ideal outcomes, including universal coverage, physician choice, equal access to services, and protection from discrimination. 

The 鈥渞eproductive justice鈥 framework moved beyond the limited focus on that dominated mainstream feminist discourse and organizing and shifted toward overall reproductive care. But unfortunately, three decades later, many of the initial aims and subsequent wins of the abortion rights and reproductive justice movements are in peril. In 2022, the Supreme Court overturned Roe v. Wade, ending a near half-century of constitutional protection of abortion rights. 

Since then, the conservative push for statewide abortion bans has accelerated, with access at risk of being severely limited or prohibited in 26 states and three territories, according to the . While the language, promise, and organizing power of reproductive justice endure, this restrictive political landscape is demanding a retrenched focus on abortion access to the detriment of other goals.

In the last few years, for trans people, particularly youth, have increased alongside abortion bans. A year before Roe v. Wade was overturned, Arkansas became the first state to ban gender-affirming care for trans minors. That number has since increased to 27. Now, the trans rights movement has taken up the mantle to defend the right to gender-affirming care to varying degrees of success.听

Unfortunately, the movement has been plagued by widespread cis ignorance about what the care entails and whether youth deserve access to it. If people moved beyond salacious headlines and hateful rhetoric, they鈥檇 learn that 鈥渆ncompasses a range of social, psychological, behavioral, and medical interventions.鈥 They鈥檇 also realize that plenty of cis people access similar treatment for a variety of reasons. Unfortunately, this endless discourse often ignores that other health care decisions for minors are often trusted to be handled by physicians, parents, and the minors in question.

While conservatives regularly claim that banning gender-affirming care will defend and protect youth, the Trump administration鈥檚 order tries to ban gender-affirming care for people in the first year of legal adulthood as well. It reveals a larger conservative hope to , as was tried in Florida in 2023. This is all the more reason why we must build a broader movement that intertwines the fight for reproductive rights, gender-affirming care, intersex rights, and bodily autonomy writ large.

Every day in this Trumpian hell has been chaotic and demoralizing. These stressful times encourage us to turn inward and pull away from the collective. However, now is the time for us to expand and tap into collaboration and solidarity. We must begin to think beyond the silos of queer, trans, feminist, or reproductive justice movements, but as a broader fleet of gender liberationists. After a decade of discussions about trans visibility that have proved largely ineffectual, I鈥檓 invested in moving away from having my experiences simply being seen. They need to be understood as just one thread of a larger collective tapestry that includes everyone understanding their right to gender liberation.




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Above and Beyond Restoring Roe /body-politics/2025/03/05/progress-2025-beyond-roe Wed, 05 Mar 2025 22:33:48 +0000 /?post_type=article&p=124225 Taylor Young has never wanted to be a mom. From the time the now 27-year-old began dating, she experienced persistent anxiety around the thought of getting pregnant in Ohio, a Republican-controlled state where Young felt her right to abortion was tenuous. 

In 2018, she discovered the childfree subreddit, an online forum on Reddit for people who do not have children and do not want them. In that forum, she learned about , a procedure that removes both fallopian tubes and permanently prevents pregnancy.

鈥淚 was 19 or 20, and I knew I probably wouldn鈥檛 be able to get it,鈥 says Young, who didn鈥檛 meet the minimum age requirement to have a at the time. 鈥淏ut it was something that was kind of in my back pocket.鈥 

In 2022, when a document suggesting the U.S. Supreme Court was likely going to overturn Roe v. Wade was leaked, Young, who now met the minimum age requirement, immediately made an appointment with her gynecologist for a bilateral salpingectomy. 

After observing the mandatory one-month waiting period, Young received the procedure. 鈥淸I had felt like] an animal in a trap,鈥 she says. 鈥淏ut when I woke up from that surgery, it was just 鈥 indescribable peace.鈥 

Young is one of many people of reproductive age whose health care decisions have been influenced by the overturning of Roe v. Wade, the fundamental ruling protecting the right to abortion in the United States.

In the years since, for people between 18 and 30 has jumped, particularly among female-born people. During the 2024 election, abortion rights were a key ballot issue and several states, including Maryland and Colorado, enshrined the right to abortion into their state constitutions. 

Political promises to legalize abortion鈥攁 critical issue, but one topic in the much larger ecosystem of reproductive health care鈥攈ave overlooked some of the discussions the country must have to improve reproductive rights for the millions of reproducing people in America. When we take a closer look at the quality of reproductive health care that most people receive, it鈥檚 clear that simply restoring Roe v. Wade isn鈥檛 enough.

鈥淭he populations with the best reproductive health care outcomes 鈥 have all of [their] basic and human life needs met,鈥 says Dr. Regina Davis Moss, president and CEO of , a group that amplifies Black voices to advocate for reproductive equity. 鈥淭hat is why we have some of the worst outcomes when we compare ourselves to other industrialized countries.鈥 

Pregnant people in the United States are more likely to die during pregnancy, childbirth, or postpartum than any other high-income nation, even though are preventable. The , who statistically are less likely to have access to high-quality medical care. On average, giving birth in the U.S. can . 

Cost is a leading prohibitive factor for those who most need to access birth control, abortion, and other reproductive health care. But there are legal barriers to subsidizing reproductive health care services鈥攕uch as the Hyde Amendment, which bans the use of federal funds for abortion with few exceptions鈥攁nd in many counties, no one to provide them. An estimated , for example, do not have a single birthing facility or obstetric clinician to deliver maternal care. 

So, what might reproductive health care look like in a reimagined America that puts equity first? There鈥檚 already a framework for it: , a critical feminist framework that advocates for the right to have children, the right not to have them, and the right to raise children in a safe environment.

A Quest for Overall Well-Being 

In 1994, a group of Black women activists coined the term 鈥渞eproductive justice鈥 to achieve, as , 鈥渢he complete physical, mental, spiritual, political, social, and economic well-being of women and girls, based on the full achievement and protection of women鈥檚 human rights.鈥

While reproductive justice promotes equitable reproductive health care for everyone, the idea was born out of the struggles that people of color鈥攑articularly Black women鈥攈ave faced in the United States since slavery, when they were forced to bear children to work on plantations.

The framework acknowledges that Black women face poorer reproductive health outcomes鈥攁nd aims to do something about it. 鈥淭he reproductive justice framework analyzes how the ability of any woman to determine her own reproductive destiny is linked directly to the conditions in her community鈥攁nd these conditions are not just a matter of individual choice and access,鈥 Ross writes. 鈥淩eproductive justice addresses the social reality of inequality鈥攕pecifically, the inequality of opportunities that we have to control our reproductive destiny.鈥 

There is a modern-day implicit bias in health care, says Davis Moss, that women as a whole can鈥檛 be trusted to make their own decisions about their bodies. For example, Black women commonly report that health care providers are not offering them the full range of contraceptive options.

鈥淭he subjugation, the control, all that has happened ever since the country was born,鈥 says Davis Moss. 鈥淲别鈥檝e seen that happen over the years in our health care system, in segregated hospitals, all the way up to modern day in clinical care encounters.鈥 

Though Young鈥檚 bilateral salpingectomy, which can cost thousands of dollars without insurance, was fully covered by Ohio Medicaid, cost remains a prohibitive factor for many people accessing reproductive health care in the United States. 

Take contraception, for example. A , which interviewed more than 5,000 female-born participants, looked at how cost influences contraceptive choice. Researchers found that a quarter of those surveyed with insurance had to pay at least part of their birth control costs out of pocket. 鈥淎ny time you have to make a choice about day-to-day expenses and a copay鈥 you know, living expenses, keeping food on the table鈥 that is going to have an impact [on health],鈥 says Davis Moss. 

The survey also found that of those who were in their reproductive years, one in five women who were uninsured had to stop using a contraceptive method because they couldn鈥檛 afford it. That data is supported by a Commonwealth Fund survey of women in several high-income nations, which found that women of reproductive age in the U.S. were the most likely to due to cost.

Solutions for the Future

In 2023, In Our Own Voice and more than 50 other Black women鈥檚 organizations published the , a playbook on how to improve reproductive justice for birthing people at the policy level. 

The report makes more than a dozen policy recommendations that Davis Moss calls 鈥減roactive, comprehensive, and life-saving.鈥 Among them are , requiring states to provide maternity and newborn care for at least one year (the time frame in which ), and increasing access to doulas and midwives who advocate for patients.

Passing acts like the would require the federal government to provide funding for abortion services. 鈥淭hat in and of itself directly impacts a large percentage of Black women of child-bearing age [who] are on Medicaid and Medicare,鈥 says Davis Moss.

For people struggling to pay for contraception, with or without health insurance, the cost of an in-person abortion鈥攖he median price is $600鈥攊s somewhat unthinkable. Medication abortion, however, can be cheaper and more accessible. Such is the promise of telehealth abortion, a virtual way to connect with a doctor, receive a prescription, and take abortion pills in a supportive environment.

Increasingly more women in the United States are finding themselves living in maternity care and 鈥攁reas where there is limited or nonexistent access to prenatal, postnatal, maternity, contraceptive, or abortion services. Telemedicine can provide a range of services for people living in these areas at a fraction of the cost鈥攖he median price of a telehealth medication abortion is $150.

鈥淭elehealth does a lot to remove barriers to access to health care,鈥 says Dr. Ushma Upadhyay, a public health scientist at UC San Francisco who researches the impacts of telehealth abortion. 鈥淧eople who live in rural areas, young people, people who report facing food insecurity鈥 in our research, they are the most likely to have said that telehealth enabled them to have an abortion.鈥 

But even with the advent of telehealth, both Upadhyay and Davis Moss say addressing racism is essential to establishing an equitable reproductive future. That鈥檚 one of the reasons the Black Reproductive Policy Agenda recommends funding anti-Black racism programs as a part of its agenda. 

鈥淭his is the reason those 12 Black women 30 years ago said 鈥榊ou can鈥檛 only focus on abortion,鈥欌 says Davis Moss. 鈥淚t鈥檚 impossible to have one without the other.鈥

After getting a bilateral salpingectomy, Young feels relieved. Yet she still worries about what will happen with Medicaid and the Affordable Care Act鈥攖he resources she relies on to help her afford care for chronic health issues鈥攗nder the Trump administration, and what that means for others seeking care.

鈥淭hinking about if other women don鈥檛 have access, that breaks my heart, and from the abortion side [鈥 it鈥檚 too much to bear,鈥 she says, emotion tugging at her voice.  鈥淚 feel relieved I got [the procedure] done when I did. I feel safe.鈥

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What Frogs Teach Us About Queerphobia in Science /body-politics/2025/03/04/critical-toxicity-studies-excerpt Tue, 04 Mar 2025 23:18:39 +0000 /?post_type=article&p=124194 My favorite meme about so-called gay frogs鈥攆eared to be feminized by toxic chemicals鈥攊s captioned 鈥淵ou have to be male or female!鈥 Directly beneath this exclamation is a cartoon drawing of a clinic-blue gloved human hand holding a green frog, whose legs dangle passively under their suspended body.

The frog appears to be calmly responding, or at least thinking, 鈥淏ro, relax, I am literally just attractive.鈥 Underneath this image and text is a scene from the gay cowboy movie Brokeback Mountain, showing Heath Ledger鈥檚 character, Ennis, hugging Jake Gyllenhaal鈥檚 character, Jack, from behind.

Mediatized panic over the specter of gay frogs, including queer mockery of this panic, has a more traceable history. Beginning in the 1990s, scientists began sounding the alarm over synthetic substances called endocrine-disrupting chemicals (EDCs), which interfere with naturally occurring hormones and thus interfere with all kinds of bodily functions and organ development, including but not limited to reproductive organs. 

While these environmental health scientists meant well, and hormone-interfering chemicals do appear to cause serious health issues, including cancer and diabetes, the science and advocacy around these chemicals almost exclusively focused on their reportedly feminizing effects, in terms of reproductive organs as well as what鈥檚 understood as sexual behavior.

One 2008 documentary lamented the 鈥渄isappearing male,鈥 for instance, and a , publicly endorsed by famed environmental activist Erin Brockovich, despaired over the threats that 鈥減lummeting sperm counts鈥 and 鈥渟hrinking penises鈥 posed to humanity.

Frogs, meanwhile, have been a model organism for laboratory science for as long as laboratory science has existed. And frogs make sense to study in the context of toxic environmental exposures because they spend so much of their lives in the water, where so much chemical pollution circulates.

Scientists studying the effects of EDCs on frogs widely reported that individual frogs exposed to these chemicals displayed same-sex sexual behavior, exhibited both female- and male-marked phenotypes, and tadpoles changed sex during development, resulting in what researchers and journalists variously called 鈥済ay,鈥 鈥渋ntersex,鈥 or 鈥渢ransgender鈥 frogs (with 鈥渟ad sex lives鈥 to boot). Queerness was thus characterized as a bad outcome of toxic exposure, and media outlets鈥攂oth mainstream and fringe鈥攚ere quick to jump directly from frog to human bodies and behaviors.

Framing same-sex sexual behavior, transness, or intersex conditions as both unnatural and undesirable has a long and ugly history that continues to rear its head, as demonstrated by recent and proliferating statewide bans on gender-affirming care and sexuality education. But labeling frogs as harmed by toxicants because toxicants 鈥渕ake them gay鈥 is not only socially wrong, it鈥檚 also biologically wrong.

Frogs, among many other animal species, engage in same-sex sexual behaviors in the wild all the time. And tadpoles, it turns out, change sex all the time, irrespective of chemical exposure. Intersex frogs, meanwhile, can still successfully mate to produce offspring.

Scientists overwhelmingly assumed that intersex frogs and male-male frog sex鈥攏obody seemed concerned about female-female frog sex鈥攄emonstrated evidence of chemical harm because that鈥檚 what biological sciences like toxicology have taught them. I hope my work helps correct this scientific and popular miseducation, for the sake of stamping out stigma as well as injustice.

Toxic environmental pollution, as environmental researchers and activists have amply documented, is indeed demonstrably harmful, while its demonstrable harms are vastly and unevenly deployed. The challenge I offer鈥攁nd rise to鈥攊s how to organize effective political action against the poisoners without stigmatizing the poisoned. I am pushing people to ask not simply what makes a poison, but rather who?

Toward Critical Toxicity Studies

The scientific elites who codified toxicology occupied particular gender-, race-, and class-privileged social locations, positions that empowered them to grant themselves the authority to define what makes a toxicant safe (and measurable), what chemical risks are acceptable (and to whom), and how much of an exposure is tolerable (where, for whom, and for what). 

I show that despite toxicologists鈥 best intentions, toxicology鈥檚 inherent biases undermine the usefulness of toxicological findings for environmental justice struggles by focusing on the environmental toxicology and ecotoxicology of EDCs, which is the sub-field fretting about feminized frogs.

The challenge for critical feminists and EDC toxicologists, including those who identify as both, is to communicate the urgency of reducing toxic pollution鈥攂y both better regulating chemicals and reining in corporate power鈥攚ithout resorting to eugenicist and masculinist tropes of deformity, low intelligence, queerness, or weakness.

I do not mean to sound flippant; EDCs are a class of toxicants that have become ubiquitous throughout our environments, being constitutive components of such commonplace objects as plastic bottles, receipt paper, or body lotion, among many other items. EDCs are particularly alarming to scientists and other environmental health advocates because they have been shown to interfere with our bodies鈥 hormonal processes via the endocrine system. 

Hormonal disturbances, in turn, can adversely affect fundamental aspects of physiological development and function, leading to a range of serious health issues, including different cancers and cardiovascular and metabolic failures. Moreover, because EDCs either mimic or override bodies鈥 naturally occurring hormone signals and hormone receptors, these particular toxicants may be more harmful at lower doses than at higher doses, upending the core tenet of toxicology: 鈥淭he dose makes the poison.鈥 

My work does not question the urgency of attending to EDC contamination, but rather how EDC toxicology inadvertently鈥攐r by design鈥攔eviles the poisoned more than the poisoner.

As mentioned, decades of EDC research on frogs in particular has been built on the homophobic and ableist assumptions that same-sex sexual behavior is abnormal, that frog sex changes are unnatural, and that intersex frogs cannot produce offspring.

The violent histories that EDC research unwittingly recites by deploying such terms as 鈥渄emasculinization鈥 and 鈥渃hemical castration鈥 is a form of violence in and of itself. By assuming and perpetuating the white supremacist and heteropatriarchal ideologies that queer, transgender, intersex, neurodivergent, and disabled bodies are somehow aberrant (read: abhorrent), the work of prominent EDC researchers and anti-toxics advocates reinforces social stigma as well as judicial, material, and biomedical inequity.

Social science scholars and activists have well documented the unjust ways that people who are marked as queer, trans, disabled, nonwhite, and foreign struggle disproportionately more to receive the medical care they need, safely access transportation and public restrooms, survive bullying and other forms of violence in schools and sports, and so on.

Put another way, feminist critique of EDC research and advocacy is not simply about problematic language or social stigma on a conceptual level, it鈥檚 about how scientific theories can be complicit in prejudicial mistreatment on an undeniably material, visceral level鈥攁nd sometimes fatally so.

Critical Toxicity Studies calls for a queer, ecofeminist study of toxicants that explicitly, carefully situates toxicants in their sociohistorical contexts, while simultaneously prefiguring a world where all bodies and identities鈥攚hether female, male, trans, intersex, disabled, queer, melanated, more-than-human, microbial, weedy, fungal, fishy, fat, young, old, sick, and so on鈥攁re fiercely, generously, handled with care.

This excerpt, adapted from by Melina Packer (New York University Press, 2025), appears by permission of the publisher.



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A Beautifully 鈥淲icked鈥 Approach to Disability /body-politics/2025/02/27/wicked-elphaba-disability Thu, 27 Feb 2025 19:36:41 +0000 /?post_type=article&p=124152 When I went to see Wicked, which is on Sunday, I wasn鈥檛 sure what to expect. Of course, the film鈥檚 inescapable buzz piqued my interest, but I was mostly driven to the theater by my curiosity about how sisters Elphaba and Nessarose Thropp would be portrayed. I was specifically interested in Nessarose (Marissa Bode), a disabled character, because she鈥檚 being played by 鈥攁 . 

However, as the movie progressed, I shockingly began relating more to Elphaba (Cynthia Erivo) than Nessarose, though I am also a wheelchair user. While Elphaba and Nessarose have the same mother, Elphaba was conceived when their mother has an extramarital affair with a man who gives her a green elixir to drink. 

From the moment Elphaba is born with green skin, her father, Frexspar (Andy Nyman), rejects her and begins treating her like an outsider. He even delegates her child-rearing to an anthropomorphic bear named Dulcibear. At the same time, Frexspar dotes relentlessly on Nessarose, his biological daughter, and discourages Elphaba from using magic in public.

Elphaba is treated as an outcast because of her green skin, which the film regards as a disability. Whenever Elphaba encounters a person for the first time, they often visibly gasp because her skin is so different from theirs. 鈥淔ine, let鈥檚 get this over with,鈥 she always retorts. 鈥淣o, I am not seasick; no, I did not eat grass as a child; and yes, I鈥檝e always been green.鈥 

When Elphaba first meets Glinda (Ariana Grande-Butera) and offers this spiel, Glinda says: 鈥淲别ll I, for one, am so sorry that you have been forced to live with … this.鈥 She then offers to fix Elphaba鈥檚 鈥渁ilment,鈥 saying, 鈥淚t is my intention to major in sorcery. So if at some point, you wanted to address the, um, problem, perhaps I could help.鈥

Elphaba鈥檚 green skin, which , is treated by the people around her as a liability or something worthy of being pitied. The inability of Elphaba鈥檚 father and classmates to connect with her because of her exterior difference made me recall the many times over the course of my life where I have been pre-judged because I use a wheelchair.听

The hesitation to acknowledge Elphaba鈥檚 existence is something I鈥檝e experienced as a Black woman with a physical disability. People have judged and misjudged me before they even learned my name or heard me speak; the world isn鈥檛 kind or thoughtful to people whose physical presentations are different. 

It鈥檚 painfully familiar for me to be ridiculed before being embraced. I鈥檓 always in a cycle of wondering what others think and if they鈥檙e being genuine. That鈥檚 a sadness that never leaves, even as I鈥檝e grown immune to what others think about me. Throughout the film, Elphaba is isolated, which fuels loneliness鈥攁nother emotion that鈥檚 particularly resonant. Being the 鈥渙nly鈥 in your family and community with such a striking difference is a bold act of existing in a world that demands conformity.  

And yet, despite the fact that Elphaba鈥檚 stepfather treats her as if she鈥檚 a burden, she鈥檚 still incredibly protective of Nessarose. When the sisters first arrive at Shiz University, where Nessarose is enrolled, an overbearing teacher attempts to push Nessarose鈥檚 wheelchair before she even asks for assistance. When Elphaba sees this transpire, she becomes upset about her sister being infantilized and conjures powerful magic that gains her impromptu admission into Shiz and gets the immediate attention of Madame Morrible (Michelle Yeoh), a professor who begins mentoring her.

Elphaba respects Nessarose鈥檚 autonomy, though other people in their lives fail to do so. It鈥檚 an example of what I call 鈥淭he Good Samaritan Gone Wrong鈥 factor, wherein people overextend themselves to help a disabled person without pausing to interrogate why. I am often forced to ask: Did the disabled person ask for help, or are you projecting a sense of helplessness onto them simply because they鈥檙e disabled? 

The latter is incredibly ableist, and a disabled person has a right to rebuff that projection. But seeing Nessarose deal with ableism in a whimsical film about magic reminded me that ableism is always lurking, even in Oz.  

But Nessarose doesn鈥檛 reciprocate Elphaba鈥檚 protective impulse. When Elphaba begins sounding the alarm about anthropomorphic animals losing their ability to speak, she鈥檚 disregarded and then silenced, an all-too-familiar reality for Black women in our real world who are constantly attempting to save our society from itself and its cruelty. Since Elphaba is also an outlier who鈥檚 isolated and disbelieved, she鈥檚 able to easily make the connection between how she鈥檚 been treated and how these animals are being treated. She understands that the push for conformity is closer than anyone recognizes. 

This parallel is even more relevant during our current political climate. During the 2024 presidential election, Black voters, especially Black women voters, considered harm reduction while some other voters leaned into鈥攁nd even relished鈥攖he harm. It can be isolating to point out injustice, especially when others can鈥檛 see or don鈥檛 believe it鈥檚 happening.

As a disabled activist, I know that the people鈥攊ncluding your fellow comrades, who should understand the misgivings of the world鈥攚ill choose a less friction-laden route rather than directly addressing the injustice. When I began speaking out against , I realized that people with privilege can be severely conflict avoidant and would rather 鈥減lay nice鈥 than hold people accountable.

Glinda, who has built a friendship with Elphaba, knows the animals in Oz are losing their ability to speak. And yet, we see her internal conflict around making noise about the issue because she鈥檚 worried it could negatively impact her social status as the most popular student at Shiz. Like Glinda, people don鈥檛 confront injustice because they still want access to the resources, money, and connections of those who cause harm. It reflects a scarcity mindset in which one believes an oppressor is worth keeping around because of potential gain. 

When Elphaba tries to bring attention to the issues occurring in Oz, she鈥檚 first scrutinized, then disbelieved, and eventually betrayed by the Wizard (Jeff Goldblum) and Madame Morrible. She鈥檚 coerced into using her magic to further discriminate against the animals in Oz鈥攁nd neither Glinda nor Nessarose come to her defense. Instead, she鈥檚 forced to go it alone, even as Madame Morrible calls her a 鈥渨icked witch鈥 across Oz鈥檚 radio waves.

Elphaba is villainized simply because she鈥檚 attempting to stop powerful people from causing more harm. There鈥檚 a deep 鈥渒now your place鈥 tone when Elphaba bucks against the Wizard and Madame Morrible鈥攊t costs her deeply and shifts the public narrative of who she is. In this moment, we see Elphaba鈥檚 undesirability in a new light; it鈥檚 no longer just the micro (her interpersonal relationships). It鈥檚 now on a macro level, as she鈥檚 being treated as a political enemy of the state. 

The parallels in Wicked regarding the ways disability, disabled people, and overall differences among people (and other species) mirror the hardships people who cannot (and do not) conform endure in our society. I left the theater better understanding that the people we view as villains may not be the true or only villain in their story. Erivo breathtakingly embodied Elphaba through every emotion and every moment of rejection and frustration, a commitment that will hopefully continue in Wicked: For Good when it鈥檚 released in November. Ultimately, I hope that our collective understanding of Elphaba expands as we uncover what happens to her鈥攁nd how her story is further shaped by those who failed to view her with care.  


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